All Things Amyloid
Hi everyone! My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.
Part of our effort is to raise awareness which, we believe, will accelerate diagnosis, enable earlier treatment, and improve patient lives. We do this in several ways, including our “All Things Amyloid” podcast. In our episodes, we will speak with patients and caregivers about their journey on a wide array of topics. We will also hear from amyloidosis experts about the medical side of this disease.
There is more hope for patients than ever before, and raising awareness around the globe is critical to improving patient lives. If you want to learn more about the work we’re doing at Mackenzie’s Mission, please visit mm713.org. Thanks for listening!
All Things Amyloid
Latest Episodes
AL Amyloidosis: The Past, Present, and Future
In this episode of All Things Amyloid, we are treated to a 40-year perspective of this disease. Adapted from his video “AL Amyloidosis: The Past, Present, and Future” Dr. Morie Gertz, professor of medicine at the Mayo Clinic in Rochester and wo...
Genetic Counseling 101
In today’s episode we’ll be talking about genetic counseling basics. And while many aren’t familiar with genetic testing, this topic is important for patients who have one of the more than 130 types of genetic variants of hereditary amyloidosis...
What ‘clues’ can PM&R providers watch for to suspect Amyloidosis?
Amyloidosis is a great masquerader, presenting with a wide array of seemingly unconnected symptoms. This reality is likely one of the biggest reasons for Amyloidosis being mis- and under-diagnosed. Patients often go years, seeing speciali...
I Just Had CAR-T – What Was It Like?
Thankfully for patients, treatments for amyloidosis continue to advance. One of the newest is CAR-T cell therapy for AL Light Chain amyloidosis. According to the Cleveland Clinic, this therapy targets the B-cell maturation antigen (BCMA) on the...
Why Is Amyloidosis So Often Misdiagnosed?
In this episode of All Things Amyloid, we hear from Dr. Angela Dispenzieri, hematologist from the Mayo Clinic. Adapted from her video “Why is amyloidosis so often misdiagnosed?”, Dr. Dispenzieri discusses the top three reasons why amyloidosis i...
